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1.
Community Health Equity Res Policy ; 44(2): 151-163, 2024 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-36189845

RESUMO

BACKGROUND: Despite advances in biomedical HIV prevention modalities such as pre-exposure prophylaxis to prevent the transmission of HIV, racial/ethnic and sexual/gender minority populations are disproportionately impacted by HIV epidemic. Alarming rates of HIV have persisted among Black gay and bisexual men, particularly in Southern states. METHODS: Utilizing data from the ViiV ACCELERATE! initiative, we explored the impact of As Much As I Can, an immersive theatre production, on HIV-related stigma behaviors. A self-administered post-performance survey was conducted with a cohort (n = 322) of randomly selected audience members. RESULTS: Overall, the results showed participants had a highly favorable experience, rating the performance with a mean score of 9.77/10. Respondents indicated they intended to change behaviors to promote HIV prevention education and to reduce stigma and discrimination including: (1) Say something if I hear stigmatizing language against people living with HIV (75.4%), (2) Say something if I hear anti-gay language (69.7%) and (3) Tell others about HIV prevention options (e.g., PrEP, PEP, condoms (64.1%). The findings show there is an association between HIV-related behavior intention and linkage to HIV care. Respondents who reported they were more likely to say something about HIV stigma were almost three times (O.R. 2.77; 95% C.I. 0.98-7.8) more likely to indicate they would follow up with a healthcare professional. CONCLUSIONS: This study suggests that immersive theatre is an effective method for communicating HIV prevention education and reducing HIV-related structural stigma and discrimination that increases HIV vulnerability for Black sexual minority men.


Assuntos
Arteterapia , Negro ou Afro-Americano , Infecções por HIV , Comportamentos Relacionados com a Saúde , Promoção da Saúde , Minorias Sexuais e de Gênero , Humanos , Masculino , Negro ou Afro-Americano/educação , Negro ou Afro-Americano/psicologia , População Negra , Promoção da Saúde/métodos , Infecções por HIV/etnologia , Infecções por HIV/prevenção & controle , Infecções por HIV/psicologia , Infecções por HIV/terapia , Homossexualidade Masculina/etnologia , Homossexualidade Masculina/psicologia , Medicina nas Artes , Minorias Sexuais e de Gênero/educação , Minorias Sexuais e de Gênero/psicologia , Comportamento Sexual/etnologia , Comportamento Sexual/psicologia , Discriminação Social/etnologia , Discriminação Social/prevenção & controle , Discriminação Social/psicologia , Estigma Social , Arteterapia/métodos , Comportamentos Relacionados com a Saúde/etnologia
2.
Am J Intellect Dev Disabil ; 128(6): 398-410, 2023 11 01.
Artigo em Inglês | MEDLINE | ID: mdl-37875271

RESUMO

Provoked by decades of grassroots activism, anti-ableist work is underway to advance disability rights. Intellectual disability (ID) researchers can integrate these social changes into their work by interrogating and transforming the beliefs and practices that underpin ID research. We share actionable ideas to foster anti-ableism and allyship in ID research. These include: (1) Learn from and nurture long-term, mutual relationships with people with ID; (2) Amplify the voices of people with ID in institutional structures that influence research; (3) Infuse anti-ableist frameworks into our own research; and (4) Embody a career-long commitment to disability rights, reflexive practice, and growth.


Assuntos
Deficiência Intelectual , Discriminação Social , Humanos , Discriminação Social/prevenção & controle , Pesquisa/tendências
4.
J Behav Med ; 46(6): 1057-1067, 2023 12.
Artigo em Inglês | MEDLINE | ID: mdl-37392342

RESUMO

Discrimination is associated with antiretroviral therapy non-adherence and reduced well-being among people with HIV. We examined the potential for coping to mediate the associations between intersectional discrimination and non-adherence and coping self-efficacy (confidence in one's ability to cope with discrimination) as a moderator that may buffer the negative effects of discrimination on non-adherence in a cross-sectional convenience sample of 82 Latino sexual minority men with HIV. In bivariate linear regressions, discrimination targeting Latino ethnic origin, undocumented residency status, and sexual orientation were each significantly associated with lower self-reported antiretroviral therapy non-adherence (percentage of prescribed doses taken in the last month) and greater use of disengagement coping (denial, substance use, venting, self-blame, behavioral disengagement). Associations between discrimination targeting Latino ethnicity and non-adherence, and discrimination targeting undocumented residency status and non-adherence, were each mediated by disengagement coping responses. Moderation analyses highlighted significant discrimination by coping self-efficacy interaction effects-both coping self-efficacy for problem solving and stopping unpleasant emotions/thoughts each moderated the associations between Latino discrimination and adherence, between undocumented residency status discrimination and adherence, and between HIV discrimination and adherence. Coping self-efficacy for getting social support moderated the association between undocumented residency status discrimination and adherence. Further, the interaction coefficients across models indicated that the negative effects of discrimination on adherence were attenuated at higher levels of coping self-efficacy. Findings highlight the need for structural interventions that reduce-and ultimately eliminate-discrimination, and interventions that address the harmful effects of discrimination and adherence improvement interventions to enhance coping skills among people faced with intersectional discrimination.


Assuntos
Adaptação Psicológica , Infecções por HIV , Hispânico ou Latino , Adesão à Medicação , Autoeficácia , Discriminação Social , Humanos , Masculino , Estudos Transversais , Hispânico ou Latino/psicologia , Infecções por HIV/tratamento farmacológico , Infecções por HIV/etnologia , Infecções por HIV/psicologia , Discriminação Social/etnologia , Discriminação Social/prevenção & controle , Discriminação Social/psicologia , Adesão à Medicação/etnologia , Adesão à Medicação/psicologia , Fármacos Anti-HIV/uso terapêutico , Bem-Estar Psicológico/psicologia , Minorias Sexuais e de Gênero/psicologia , Estados Unidos/epidemiologia
6.
JAMA ; 329(5): 365-366, 2023 02 07.
Artigo em Inglês | MEDLINE | ID: mdl-36622690

RESUMO

This Viewpoint discusses how some pulse oximeters can provide incorrect oxygen saturation data for dark-skinned patients compared with light-skinned patients, describes the reasons that biased oximeters remained in use, and highlights why a rule recently proposed by the US Department of Health and Human Services may bring about needed change in the use of pulse oximetry for patients with dark skin.


Assuntos
Direitos Humanos , Oximetria , Discriminação Social , Oximetria/instrumentação , Oximetria/normas , Discriminação Social/legislação & jurisprudência , Discriminação Social/prevenção & controle , Estados Unidos , Governo Federal , Direitos Humanos/legislação & jurisprudência , Direitos Humanos/normas
7.
JAMA ; 329(4): 283-284, 2023 01 24.
Artigo em Inglês | MEDLINE | ID: mdl-36602791

RESUMO

This Viewpoint discusses a proposed DHHS rule to address discrimination in clinical algorithms and the need for additional considerations to ensure the burden of liability for biased algorithms is not disproportionately placed on health care professionals.


Assuntos
Algoritmos , Atenção à Saúde , Preconceito , Discriminação Social , Viés , Preconceito/prevenção & controle , Discriminação Social/prevenção & controle , Atenção à Saúde/métodos , Atenção à Saúde/normas
8.
Psychiatr Serv ; 73(10): 1193-1195, 2022 10 01.
Artigo em Inglês | MEDLINE | ID: mdl-36181323

RESUMO

Although the Americans with Disabilities Act bars discrimination in the workplace on the basis of mental disability, the courts have not always been sympathetic to plaintiffs' claims of discriminatory treatment. Judges often side with employers who claim that necessary accommodations would create undue hardship or are otherwise unreasonable or that plaintiffs are not qualified for the job. Although statutory or regulatory changes may be needed to protect workers' rights, mental health professionals can be helpful to their patients who are requesting accommodations by carefully describing their functional limitations and how they can be accommodated.


Assuntos
Pessoas com Deficiência , Deficiência Intelectual , Transtornos Mentais , Humanos , Transtornos Mentais/terapia , Discriminação Social/prevenção & controle , Estados Unidos , Local de Trabalho
12.
PLoS Med ; 19(1): e1003860, 2022 01.
Artigo em Inglês | MEDLINE | ID: mdl-35015760

RESUMO

BACKGROUND: National dementia guidelines provide recommendations about the most effective approaches to diagnosis and interventions. Guidelines can improve care, but some groups such as people with minority characteristics may be disadvantaged if recommended approaches are the same for everyone. It is not known if dementia guidelines address specific needs related to patient characteristics. The objectives of this review are to identify which countries have national guidelines for dementia and synthesise recommendations relating to protected characteristics, as defined in the UK Equality Act 2010: age, disability, gender identity, marriage and civil partnership, pregnancy and maternity, race, religion or belief, sex, and sexual orientation. METHODS AND FINDINGS: We searched CINAHL, PsycINFO, and Medline databases and the Guideline International Network library from inception to March 4, 2020, for dementia guidelines in any language. We also searched, between April and September 2020, Google and the national health websites of all 196 countries in English and in each country's official languages. To be included, guidelines had to provide recommendations about dementia, which were expected to be followed by healthcare workers and be approved at a national policy level. We rated quality according to the iCAHE guideline quality checklist. We provide a narrative synthesis of recommendations identified for each protected characteristic, prioritising those from higher-quality guidelines. Forty-six guidelines from 44 countries met our criteria, of which 18 were rated as higher quality. Most guidelines (39/46; 85%) made at least one reference to protected characteristics, and we identified recommendations relating to age, disability, race (or culture, ethnicity, or language), religion, sex, and sexual orientation. Age was the most frequently referenced characteristic (31/46; 67%) followed by race (or culture, ethnicity, or language; 25/46; 54%). Recommendations included specialist investigation and support for younger people affected by dementia and consideration of culture when assessing whether someone had dementia and providing person-centred care. Guidelines recommended considering religion when providing person-centred and end-of-life care. For disability, it was recommended that healthcare workers consider intellectual disability and sensory impairment when assessing for dementia. Most recommendations related to sex recommended not using sex hormones to treat cognitive impairment in men and women. One guideline made one recommendation related to sexual orientation. The main limitation of this study is that we only included national guidelines applicable to a whole country meaning guidelines from countries with differing healthcare systems within the country may have been excluded. CONCLUSIONS: National guidelines for dementia vary in their consideration of protected characteristics. We found that around a fifth of the world's countries have guidelines for dementia. We have identified areas of good practice that can be considered for future guidelines and suggest that all guidelines provide specific evidence-based recommendations for minority groups with examples of how to implement them. This will promote equity in the care of people affected by dementia and help to ensure that people with protected characteristics also have high-quality clinical services.


Assuntos
Demência , Guias como Assunto , Programas Nacionais de Saúde , Preconceito/prevenção & controle , Discriminação Social/prevenção & controle , Humanos , Programas Nacionais de Saúde/organização & administração , Programas Nacionais de Saúde/normas , Reino Unido
13.
J Law Med Ethics ; 50(4): 776-790, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36883402

RESUMO

A robust body of research supports the centrality of K-12 education to health and well-being. Critical perspectives, particularly Critical Race Theory (CRT) and Dis/ability Critical Race Studies (DisCrit), can deepen and widen health justice's exploration of how and why a range of educational inequities drive health disparities. The CRT approaches of counternarrative storytelling, race consciousness, intersectionality, and praxis can help scholars, researchers, policymakers, and advocates understand the disparate negative health impacts of education law and policy on students of color, students with disabilities, and those with intersecting identities. Critical perspectives focus upon and strengthen the necessary exploration of how structural racism, ableism, and other systemic barriers manifest in education and drive health disparities so that these barriers can be removed.


Assuntos
Educação , Disparidades nos Níveis de Saúde , Determinantes Sociais da Saúde , Justiça Social , Racismo Sistêmico , Humanos , Direitos Civis/educação , Direitos Civis/normas , Comunicação , Estado de Consciência , Educação/métodos , Educação/normas , Políticas , Pesquisadores , Discriminação Social/prevenção & controle , Justiça Social/educação , Justiça Social/normas , Estudantes , Racismo Sistêmico/prevenção & controle , Ensino/normas
14.
Bol. malariol. salud ambient ; 61(4): 673-682, dic. 2021. tab., ilus.
Artigo em Espanhol | LILACS, LIVECS | ID: biblio-1397242

RESUMO

Se realizó una investigación de campo para conocer la gestión de los procesos de solicitud y admisión de citas médicas, considerando la estigmatización y discriminación de las personas ITS, con el fin de garantizar el derecho a la salud de estos pacientes en Perú. Se ejecutó la sistematización de la información sobre los procesos y mecanismos de exigibilidad, bajo los lineamientos y manuales de los cuatro procesos estratégicos del MINSA contemplados para el otorgamiento de citas médicas, siguiendo los lineamientos de Gob.Pe, Adicionalmente, mediante verificación de los procesos se construyeron la matriz entidad-relación de la gestión por procesos del SSP, y el flujograma del proceso de solicitud y otorgamiento de citas AS-ISS. Se consideraron aspectos tecnológicos-médicos-legales con la participación de 201 pacientes independientemente del motivo o patología a consultar, identificando incidentes en la eficiencia del proceso misional. Por último, se implementó el flujograma de procesos de reserva de citas médicas a través de la aplicación ejecutable para smartphones, tabletas y otros dispositivos móviles (APP) TO-BE la cual conlleva a 10 pasos desde el registro de usuario hasta la emisión de comprobante de otorgamiento de cita médica. Se analizaron las preferencias de los usuarios sobre las causas superables en el proceso misional, mediante una encuesta estructura a 170 usuarios de SSP(AU)


A field investigation was carried out to learn about the management of the processes of request and admission of medical appointments, considering the stigmatization and discrimination of STI people, in order to guarantee the right to health of these patients in Peru. The systematization of the information on the processes and mechanisms of enforceability was carried out, under the guidelines and manuals of the four strategic processes of the MINSA contemplated for the granting of medical appointments, following the guidelines of Gov. Pe, Additionally, through verification of the processes The entity-relationship matrix of the management by processes of the SSP, and the flowchart of the process of request and granting of appointments AS-ISS were constructed. Technological-medical-legal aspects were considered with the participation of 201 patients regardless of the reason or pathology to be consulted, identifying incidents in the efficiency of the missionary process. Finally, the flowchart of medical appointment reservation processes was implemented through the executable application for smartphones, tablets and other mobile devices (APP) TO-BE, which entails 10 steps from user registration to issuance of voucher of granting a medical appointment. Users' preferences regarding causes that can be overcome in the missionary process were analyzed through a structured survey of 170 SSP users(AU)


Assuntos
Humanos , Masculino , Feminino , Pacientes , Agendamento de Consultas , Infecções Sexualmente Transmissíveis/prevenção & controle , Discriminação Social/prevenção & controle , Direito à Saúde , Peru , Médicos , Design de Software , Inquéritos e Questionários , Computadores de Mão , Smartphone
15.
Psychiatriki ; 32(3): 183-186, 2021 Sep 20.
Artigo em Grego Moderno, Inglês | MEDLINE | ID: mdl-34390552

RESUMO

Social stigma has long been defined by Ervin Goffman as an attribute that it is deeply discrediting and reduces the individual who bears it from a whole and usual person to a tarnished one, unfit to be included into the mainstream society.1 As stigma spans time and space and has been documented in other social species such as ants and chimpanzees, one might argue for its adaptive potential. Neuberg and colleagues2 have suggested that humans generate stigmas against threats to effective group functioning, with a notable case being infectious diseases. A similar explanation has been put forward by other researchers who consider stigma to have evolved from disease-avoidance mechanisms.3 Hence, it is not surprising that tuberculosis, HIV and leprosy have been surrounded by stigma and discrimination.4,5 More recently, people who had survived the 2013-2016 Ebola outbreak tackled social exclusion and unemployment after returning to their neighborhoods.6 Nowadays, the global community faces an unprecedented challenge of grappling with the COVID-19 pandemic. From the very outset, social distance measures were introduced in order to contain the spread of the virus, ranging from maintaining 1.5 meters physical distance to strict lockdowns. However, this may easily escalate into stigmatizing and discriminatory behaviours (desired social distance is a proxy of discrimination) against people who have suffered from COVID-19, their relatives and their caregivers, with the United Nations stating that "fear, rumours and stigma" are the key challenges surrounding COVID-19.7 Apart from the psychological distress experienced by the stigmatized individuals, due to anticipated stigma people might start concealing their illness, avoid or delay seeking medical advice or testing until they are seriously ill and be reluctant to collaborate with authorities on tracing contacts. Therefore, timely identifying stigma and addressing it is an integral part of an effective health response to the ongoing pandemic. In spite of its importance, research on COVID-19 related stigma is scarce. From the perspective of the stigmatized individuals, a study in China8 demonstrated that COVID-19 survivors faced heightened levels of overall stigma, social rejection, financial insecurity, internalized shame and social isolation, compared to healthy controls. From the perspective of the general population, a study in US9 substantiated low levels of anticipated stigma and stereotype endorsement; however, respondents who anticipated greater stigma were less likely to seek a COVID-19 test. It is therefore clear that the international literature is still on its infancy with respect to COVID-19 related stigma. In this context, in the First Department of Psychiatry, University of Athens, we conducted a survey on public attitudes to COVID-19 and to mental disorders. The study would inform the design and implementation of anti-stigma initiatives, funded by the Regional Governor of Attica. As physical distancing and social distancing are interwoven, with some researchers and practitioners using the terms interchangeably, and social distancing is also a protective public health measure against COVID-19, we enquired about attitudes and desired social distance from people who had recovered from COVID-19. Nonetheless, it merits noting that evidence from other diseases indicates that stigma may persist even after recovery.10 Moreover, rather than describing public attitudes overall, we were more interested in investigating where COVID-19 related stigma stands as compared to the most stigmatizing health condition to date, i.e., severe mental illness.11 Interestingly enough, which elements of severe mental illness render it the most stigmatized as compared to other conditions is still speculative: is it the fear of madness? the severity and the type of symptoms? the purported incurability or its chronicity? In our study, evidence from a convenience sample of 370 residents of Attica indicates that the general population holds more negative attitudes towards people who have recovered from COVID-19 than towards people with mental disorders. Nonetheless, respondents reported lower levels of desired social distance from recovered COVID-19 cases as compared to mental illness cases in social interactions of graded intimacy; however, the difference between the two groups was found to decrease as the level of intimacy decreased as well. In other words, desired social distance from COVID-19 cases is more easily discernible in transient social encounters, like talking to a stranger. It is therefore clear that social distance is still a public health protective measure rather than a stigma manifestation. For social encounters of greater intimacy, usually a sign of discriminatory behaviours, having recovered from COVID-19 is not a deterrent to interaction. Findings can be explained by the acute (non-chronic) nature of the disease, both in terms of symptoms as well as the 10-day period since symptom onset for being contagious. Nonetheless, with emerging evidence substantiating the notion of long COVID-19, defined as the persistence of symptoms for 3 weeks after infection,12 this might quickly change. Moreover, with many public health protective measures available, such as the use of mask, diagnostic testing and vaccination, people who become infected are more likely to be blamed for contracting the disease and thus deemed responsible for this, in line with the Attribution Theory.13 Specifically, overarching evidence from stigma research in many diseases/conditions indicates that when an illness or a social condition, such as economic disadvantage, is attributed to internal causes, as compared to external, lay people are more likely to hold stigmatizing attitudes.14-16 Therefore, as attitudes towards COVID-19 are worse compared to those towards people with mental illness, if tailored anti-stigma action is not undertaken, it is only a matter of time for prejudices to evolve into discriminatory behaviours, with devastating consequences on both the individuals and the course of the pandemic. Concomitantly, as severe mental illness is neither life threatening nor contagious, but COVID-19 is, it is interesting to explore how stigma is related to evolutionary mechanisms favouring adaptability and survival as well as which elements are the drivers of stigma development and establishment. Therefore, comparing and contrasting the stigma surrounding these conditions may shed light on the underpinnings of social stigma and facilitate effective interventions to reduce it and eventually eliminate it.


Assuntos
COVID-19 , Transtornos Mentais , Distanciamento Físico , Distância Psicológica , Angústia Psicológica , Intervenção Psicossocial/métodos , Estigma Social , COVID-19/complicações , COVID-19/epidemiologia , COVID-19/prevenção & controle , COVID-19/psicologia , COVID-19/transmissão , Controle de Doenças Transmissíveis/métodos , Transmissão de Doença Infecciosa/prevenção & controle , Grécia/epidemiologia , Humanos , Transtornos Mentais/epidemiologia , Transtornos Mentais/fisiopatologia , SARS-CoV-2 , Discriminação Social/prevenção & controle , Discriminação Social/psicologia , Isolamento Social/psicologia , Tempo para o Tratamento , Síndrome Pós-COVID-19 Aguda
18.
Obstet Gynecol ; 138(2): 272-277, 2021 08 01.
Artigo em Inglês | MEDLINE | ID: mdl-34237768

RESUMO

In the setting of long-standing structural racism in health care, it is imperative to highlight inequities in the medical school-to-residency transition. In obstetrics and gynecology, the percentage of Black residents has decreased in the past decade. The etiology for this troubling decrease is unknown, but racial and ethnic biases inherent in key residency application metrics are finally being recognized, while the use of these metrics to filter applicants is increasing. Now is the time for action and for transformational change to rectify the factors that are detrimentally affecting the racial diversity of our residents. This will benefit our patients and learners with equitable health care and better outcomes.


Assuntos
Diversidade Cultural , Ginecologia/educação , Internato e Residência/estatística & dados numéricos , Obstetrícia/educação , Discriminação Social/prevenção & controle , População Negra/estatística & dados numéricos , Etnicidade , Feminino , Disparidades em Assistência à Saúde/estatística & dados numéricos , Humanos , Masculino , Racismo/prevenção & controle
20.
Hastings Cent Rep ; 51(2): 6-9, 2021 03.
Artigo em Inglês | MEDLINE | ID: mdl-33840102

RESUMO

The Covid-19 pandemic has revealed myriad social, economic, and health inequities that disproportionately burden populations that have been made medically or socially vulnerable. Inspired by state and local governments that declared racism a public health crisis or emergency, the Anti-Racism in Public Health Act of 2020 reflects a shifting paradigm in which racism is considered a social determinant of health. Indeed, health inequities fundamentally rooted in structural racism have been exacerbated by the Covid-19 pandemic, which calls for the integration of antiracist praxis to promote ethical public health research processes. This commentary describes ways in which antiracist praxis-which emphasizes empowerment of traditionally marginalized populations-offers strategies to explicitly address power imbalance, stigmatization, and other consequences of structural racism in public health research.


Assuntos
COVID-19/etnologia , Disparidades nos Níveis de Saúde , Disparidades em Assistência à Saúde/tendências , Saúde Pública , Racismo , Determinantes Sociais da Saúde , Códigos de Ética , Humanos , Saúde Pública/ética , Saúde Pública/métodos , Saúde Pública/normas , Racismo/prevenção & controle , Racismo/tendências , Determinantes Sociais da Saúde/ética , Determinantes Sociais da Saúde/normas , Discriminação Social/prevenção & controle , Marginalização Social , Estados Unidos
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